Wednesday, August 5, 2015

Autism

For anyone who isn't aware, my 2 oldest children, Mason & Brooke, both have autism. If you've ever been curious about this complex disorder, or want to understand our journey, here are some facts & tidbits from our experience with autism.

Autism spectrum disorder (ASD) is a range of complex neurodevelopment disorders, characterized by social impairments, communication difficulties, and restricted& repetitive patterns of behavior. Basically, their little brains function a little differently; they're not disabled, they're "differenty-abled".

Mason was diagnosed as being on the autism spectrum when he was 18 months old. The pediatrician's main concern was Mason's lack of vocabulary at his 18-month wellness check; at that point Mason wasn't speaking at all. We also noticed Mason struggled with eye-contact, responding to his name, and didn't interact with other kids. As soon as we received the diagnosis, we moved forward with getting Mason into speech therapy. After the first month of attempting to attend therapy outside of the home, we decided (along with the pediatrician) to visit the idea of at-home therapy. Mason's doctor helped us get in contact with a local support group for individuals with disabilities. We were given a case manager who had the responsibility of helping us create an ISP (Individualized Service Plan) for Mason; this ISP helped us determine specific goals that we wanted to set for Mason's progress. Throughout the week, we had visits from speech, occupational, & social-emotional therapists who aided us in reaching these goals.
 Mason at 18-months old, right around the time of his diagnosis 

As a result of being in frequent communication with several therapists & our pediatrician, it was evident between the ages of 12-18 months that Brooke was also on the autism spectrum. She was also non-verbal at this age, as well as struggling with social interaction. Brooke received a separate ISP & began having visits with Mason's therapists each week.
 Brooke at 18-months old, right after her diagnosis 

The support group that had assisted us in getting Mason & Brooke into therapy is only available for services until a child turns 3. As we approached Mason's third birthday, we began the process of getting Mason enrolled in a Special Needs preschool class that would focus on the specific needs surrounding his autism. Along with his case manager, we created an IEP (Individualized Education Plan) that included specific goals for Mason's progress that his new teacher could implement in the classroom. Mason began preschool immediately after he turned 3. Although he would no longer be receiving therapy at home, therapists came into his class numerous times each week. Brooke continued seeing her therapists in our home until she turned 3, and then she entered the same pre-school class as Mason. In the fall of 2014, Mason & Brooke began seeing an additional speech therapist at a behavioral treatment center that specializes in therapies for individuals with autism. 
Brooke heading to her first speech therapy session at a new behavioral treatment center in Oct 2014
 A few photos of Mason & Brooke from various first & last days of Preschool 
Mason's preschool class in the spring of 2014 (He's on the bottom right)
Mason & Brooke's class in the spring of 2015 (Mason is sitting on the floor on the left, Brooke is the only girl!)

We are now in August of 2015- Mason is 5 & Brooke is 4. Mason has completed 2 years of pre-school & is ready for kindergarten this fall! We had considered keeping him in his preschool class with Brooke for an additional year (letting them start kindergarten together), but his teacher assured me that Mason could really benefit from moving forward into elementary school! Mason will be attending an autism-centered class; there are several kids of different ages, all with autism, in his class. As he continues to learn & progress, he has the opportunity to spend increasing amounts of time integrating with the "standard" kindergarten class. Brooke will spend one more year in preschool, and will then move into the same class as Mason in elementary school.

We are also incredibly fortunate to be in the beginning stages of getting Mason & Brooke into ABA (Applied Behavioral Analysis) therapy. Behavior analysis focuses on the principles that explain how learning takes place. Through decades of research, the field of behavior analysis has developed many techniques for increasing useful behaviors and reducing those that may cause harm or interfere with learning. Applied behavior analysis (ABA) is the use of these techniques and principles to bring about meaningful and positive change in behavior. In particular, ABA principles and techniques can foster basic skills such as looking, listening and imitating, as well as complex skills such as reading, conversing and understanding another person’s perspective. Today, ABA is widely recognized as a safe and effective treatment for autism. Unfortunately, its expensive & not easily attainable. For several years, we have been on a waitlist for assistance with getting Mason & Brooke into this reliable, successful form of  therapy. As of now (August of 2015), Brooke has been approved for this financial assistance ($25,000 a year!!), and we are beginning the process of getting her enrolled. We have notification that Mason is very close, too! We are anxiously & eagerly waiting to see the potential impact this therapy could have on our kids' lives.

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August 2015 Progress Updates

Mason: Until November of 2014, Mason was completely nonverbal; he had practically no way of communicating anything to us. In October of 2014, he started receiving speech therapy at a behavioral treatment facility that specialized in therapies for individuals with autism. Within a month, Mason said his first word! In the past 9 months, Mason's vocabulary has exploded! He is capable of repeating almost any word you ask him to, but, more importantly, he is speaking on his own- without being prompted. Also, he is beginning to follow simple directions. His eye contact has improved significantly, too! Mason still struggles with social interaction with kids his own age; he can play along side his peers, but he doesn't interact with them. However, he is very friendly & loveable with adults.
Brooke: Brooke began speaking right after she turned 2; she quickly mastered her numbers, alphabet, colors & shapes. Now that she's 4, she can also sing several nursery rhymes. However, unfortunately, she cannot sufficiently communicate any needs/ wants verbally. Brooke is very content to play by herself & shows signs of being obsessive & compulsive. It's frustratingly difficult to tap into Brooke's mind, and she doesn't show the same desire to learn that Mason has displayed. Similarly to Mason, Brooke struggles with social interaction with children. But, she can be very cuddly/loveable with adults when she chooses to.

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